"And we'll have funds, funds funds..."

Wow. It's been forever since I posted here. That's because most of our "updates" are done on our Facebook page now. you can get there here: https://www.facebook.com/helpr2ba

That being said, we have two sites to help raise money for the Bili Build. The first is at Fund Anything. But this one only has 9 weeks (as of today) left to go. The second one is at Go Fund Me, and has no time limit on it. We can't get this project started without money. Please help!

"Tweet!" It's Droidspeak for "Tweet!"

We're on Twitter now! Follow at @R2_BA

LIKE US!

Bili finally has a community page on Facebook. Come see her at http://www.facebook.com/helpr2ba

Embarrassment.

Wow. Has it really been almost a year already since I posted anything here? Not that there's been much progress, but I wanted to keep up info about BA and liver disease. My last post was on Rare Disease Day of last year, and it's almost upon us already. February 29 is Rare Disease Day. Take some time to learn about Biliary Atresia, and other pediatric liver conditions.

Also, feel free to donate to the Bili Build Fund using the PayPal button at the right side of the blog!

Thanks for visiting.

Get some learnin'!

Hey! It's Rare Disease Day! Here is my son, Denim's, Biliary Atresia story http://www.caringbridge.org/visit/denimweaver

Team PLaiD, halfway there!

I am 73% away from my goal of $150 for the Liver Walk. I only need $40 more!  Our team has set an overall goal of $2000, and we're exactly halfway there. Please support me by going to http://go.liverfoundation.org/site/TR/LiverLifeWalk2011/LiverLifeWalk?px=1685805&pg=personal&fr_id=2600

Liver Walk.

I am walking and raising funds for the American Liver Foundation's signature fundraising event, the Liver Life Walk, and I need your help. I have set myself a goal of $150 to raise by the walk in June. Please, if you can't donate today, pass this link on to a friend or share it.  Money raised by ALF goes to research and education for all liver diseases, including Biliary Atresia, the liver disease that my son Denim has. 

 

I've already raised $85. I'm 57% there!

Just go here --> Liver Walk

SLACKER!

Okay, not really.  I realize that as of today, it's been a month since I posted here. It's not that I've given up, or forgotten about this. It's just that I'm still waiting to have the money to get things really started. So far, I've only been able to have $20 dedicated to the build (thanks, Amber), and I need at least $35 to get started. Money's tight all around. Just wanted to keep everyone updated though!  Bili does have her own Facebook page now. You can visit her profile here.

Thanks for keeping up!

Defined!

For those of you who really want to know why I'm doing this, exactly what it is that my son was born with, you can learn about it here.

No real updates, just want you to know what I'm trying to do.

Booked.

I received the book yesterday. was a bit disappointed because the seller listed it as new, but it obviously wasn't. Oh, well, I paid less than $7 including shipping.  Waiting to start buying the wood for the frame.  Total cost for wood should be less than $40, and I should have enough for 4 frames.  Looks like people on the forums sell the frames for about $100.  So this could give me more money for the Droid.

BONANZA!

I just ordered the book "Robot Builder's Bonanza," from Amazon. I'd noticed other R2 builders have bought it, and although I'm not sure if it will actually help me when I get to the electronics side of things with Bili,  for $6.60, including shipping, for a book that lists at $24.95, it should at least be an interesting, informative, and inexpensive read.

I also went to The Big Tool Store, right down the street from my house, because they are one of two stores in Kansas that carry the Rockler Lazy Suzan Bearing that I'll need for the dome. They have it for $60. It'll have to wait a little while, but at least I know I can get it without paying all the shipping costs.

Total spent on Bili so far, $6.60

Vision of the future...

Thanks to my friend, Stephanie Cole Cowan, I have two mock up images of what Bili the Droid should look like when she's finished. Keep in mind that although the dome is clear on the second picture, Bili's dome will not be.

Also, I hadn't posted about it yet, but Friday night, I met a couple of the guys from the 149th War Wolves Squad, a local Star Wars costuming group. They were really interested in my project.  So, I am getting a lot of support from friends, family, and other Star Wars fans.

Since the point of this project is to help spread awareness of pediatric liver diseases, and organ donation, with the motto "Recycle Yourself," I'm going to try to get as many of the materials and parts as I can donated, from recycled sources, or secondhand. Occasionally, I will mention on here that I need certain materials, and hope someone will offer to donate said materials.

Such as, right now, I'm looking for enough plywood to make my frame. I need 1/2" and 3/4" plywood. Anyone have any?

I may put up a Paypal donation button to see if anyone will want to donate to the build.

I thank everyone for all current and future support for this project.

Before the beginning...

I'm Jason.  Jason M. Weaver if you need the whole name. I'm married to a wonderful woman, Beth, with three incredibly beautiful children. 2 daughters, Kara and Maycen, and my inspiration for this project, my son, Denim. 

Denim was born in April of 2009. He seemed perfectly fine at birth, but for his first three weeks, he always seemed to have a heavy cough. We took him to the hospital when he was about 3 weeks old for some tests, and one of his x-rays showed a cloud.  The cough cleared up, and we never found out what was causing it, but the cloudy x-ray, with still no explanation, brought a more serious problem to a doctor's attention. My son was born without a gall bladder (not so important), or the bile ducts from the liver to the intestines(VERY important). He was born with a rare liver disease called Biliary Atresia.  When he was a month old, he had a major surgery called a Kasai Procedure to connect his liver directly to his large intestine.  The procedure is very rare, and only works about a third of the time. It worked with my son.

Denim is doing incredibly well at 17 months. You'd never know that anything was wrong with him. But things can change very quickly with this, and he will most likely need a liver transplant by the time he's 30.  Most kids with Biliary Atresia, or B.A. Babies, don't do as well as Denim.

I recently became friends with someone on Facebook going by the name Artoo Katee. R2-KT is an R2 unit droid built by a member of the R2 Builders Club, in memory of a little girl, Katie Johnson, who died of cancer several years ago. Her father, and the builder/owner of R2-KT take the droid around the country to different conventions and charity events, teaching about cancer.  Please check out Artoo Katee's homepage, www.r2kt.com.

Being inspired by Artoo Katee, I decided I'm going to  build my own R2 Unit droid, dedicated to my son, and the many other children suffering from Biliary Atresia and other pediatric liver diseases. I know it will take a lot of time, several years probably, but I think it will be worth it.
I discovered the R2 Builders club through Katee's homepage. Through them I am getting plans and meeting people who can help me with this.

I was debating whether to call my Droid R2-DW, for Denim Wayne, with a blue color scheme, or R2-BA, for obvious reasons. I settled on R2-BA, because, this isn't just for my son. The color scheme will be yellow and green, representing pediatric liver disease, and organ donation respectively. The familiar, or nickname of my Droid will be Bili

This Blog will chronicle my "Journey to Bili."